>My friend The Lucky Druggie” Just made some awesome points about how we cope. She deals with something completely different than I do, but the points are still the same. Sometimes you just get tired, I choose to spend alot of time and energy tic suppressing, why, because most of the time I’d rather not be ticing I’d rather be doing whatever I’m doing,

Work the last few times has been rough, it’s non-stop, and they suck about getting regular breaks, I spend the last hour-ish of my shift Ticin’ so bad I’ve gotten funny looks. It’s starting to get on my nerves though. I think that IF they’d listen to me and give me 5 min every hour instead of the usual 15 min ever 2-3 I’d be much better.

Anyhow I’m tired, and gonna take a nap, but I promised 1 a week so here’s this weeks.


>I’ve had a pretty bland few days, a few hours of training at work, and a canceled date. It amazes me how I was thinking I’d have a ton to write about when I started this blog, and now I’m looking at the screen and wondering how I’m going to fill it. As a good beginning I’m going to tell the story of my Diagnosis.

In the beginning there was the Ginnungagap… that might be a bit far back in time. Let’s start with my first memory relating to Tics. When I was a little kid, maybe between 5 and 7 and starting school, Mom or a teacher, I have no clue who noticed that I was showing sign’s of ADD. I went to alot of doctors, and eventually was put on medication for it. I remember that Ritalin was not an option because dad had some kind of Tic disorder as a kid, but grew out of it. So I was a medicated ADD kid like gillions of them out there, but I also had tics, I didn’t know they were tics, and would suppress them when mom told me cut it out, since they were ALL simple vocal(grunting, gasping, ect.) it was just assumed that I was being ADD and annoying. The tic’s I remember were grunting like a piggy, and gasping all the time. With no explanation and fairly low impact Tic’s it was never pursued beyond that.

When I was about 13 or so my brother was having issue with allergies he would sniffle all of the time. At the time this was his problem and not mine. After several months of seeing specialists, one of them referred him to a psychologist to be tested for Tourettes. That Doctor was William McMahon, who was doing a study on TS, and asked my brother and family to join and participate. As a result of this both my father and I were also diagnosed.

This wasn’t a huge change in my life, but it was significant. For the first time ever I had a name for why I was making these funny noises. I also learned what there was such a thing as motor tics, and promptly swapped out a few of my more obnoxious tics for a head flipping one. The whole thing was more understandable though, and it was confront-able, and cope-able. My uncle didn’t think that I forgot to breathe when I was angry and started Ticin’ I could tell the asshole who was picking on me what I had, and in my own personal bit of revenge I could cuss them out without consequence. I don’t have the cussing thing, I can’t spell it even well enough to look it up, and don’t have a book handy, but I was willing to use it to my advantage. Having a name for what was up made managing it something I could do much more easily.

Next week: Either an analysis of the “Melora” problem, or maybe my experience in with meds, or something entirely different.


>Two posts in one day, why, cause it seemed stupid to not make my intro it’s own post that I can link to directly.

My philosophy on disability can be summed up in 3 words, “Cope with it.”

What does that mean?

Well to begin with it means that I choose not to identify with my disorders, I’m not Obese(okay well clinically I still need to lose 50 lbs to not be obese, but that’s not the point), I’m not a Tourettes kid, and I’m not any things other than me. I choose to cope with something that I need to cope with, just like I have to cope when I’m out of sugar and trying to bake.

I cope with it, not against it. This means that I acknowledge that this is something I have to deal with, it’s stupid to spend all day tic suppressing when I could be having a good time, and let them out, magically that often makes them disappear in the end.

I was supposed to have something clever to say about it, but all I can come up with is that the disorder is just that it’s a disorder, it’s incurable, and it’s not malicious, it just is. My Buddhism Professor would probably say “it is in the nature of the Tourettes to be a pain in my ass” or some pseudo-wise saying like that.

This basic philosophy also carries over to my choice in management tools, I dislike the side-effects of every med I’ve ever been on enough that I manage without medication. I do self-medicate with Caffeine.

I recognize that for various reasons this philosophy may not work for everyone. I do think it’s the most sensible approach to disability I’ve seen. To many people identify with their disorders and let them control their lives. Life is to be lived, not dictated by something that you can cope with.


>Okay so largely because I think I’ve got something to say about this, and because I want to get in the habit of writing on a regular basis. I’ve decided to begin a Blog about living with Tourettes Syndrome.

Some things that you will find here. The experiences of someone who really does cope with Tourettes on a daily basis. A positive action based method of coping with Tourettes. Accurate information about Tourettes, coping with it, and whatever other things happen to be of interest to me in my life this week. At least weekly updates, likely bi-weekly Monday and Thursday. Support in coping.

Some things that you will not be finding here. Pity parties, I’ve got family members who are so into these things, all they do is paralyze you and prevent action. Dry Clinical data concerning Tourettes or any of my other issues. The real names of my friends and associates, they’ll all receive a nickname for this blog.

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